CARE-NMD International Conference
CARE-NMD International Conference on DMD
We are delighted to announce a major international conference on Duchenne muscular dystrophy (DMD) on 18th-19th April 2013 in Budapest. Full details and registration information is available here.
CARE-NMD is a European Project improving care for Duchenne muscular dystrophy.
CARE-NMD aims to improve patient quality of life and life expectancy, reducing health inequalities between and within countries.
The project brings together leading care centres to disseminate information about best-practice Duchenne care, and to implement international consensus care standards.
The CARE-NMD Patient Survey across 7 partner countries, with almost 1100 responses, is the largest ever survey of care and quality of life for DMD.